Her Rare Condition Explained – Hollywood Life

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Celine Dion



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“My Heart Will Go On” hitmaker. Celine Dion currently struggling with Stiff Person Syndrome. Last spring, the 55-year-old singer called it quits Courage world tour due to complications from her illness. The singer said in May 2023 that it was a “huge disappointment” and said that refunds would be available to fans. “It’s not fair for you to keep canceling the shows, and even though it breaks my heart, it’s best that we cancel everything now until I’m ready to be back on it.” the stage again,” she said in a statement.

Despite her health problems, Celine still appeared amazing at the 2024 Grammy Awards on February 4. She presented the award for Album of the Year which went to Taylor Swift. Celine received a standing ovation when she walked out on stage. “Thank you all. I love you back,” she told the audience.

Celine is one of the most popular singers in the world. She is not only famous for her iconic song in the Titanic filmbut she has gone on to win a total of five Grammy Awards the profession. Additionally, the blonde beauty became a Las Vegas resident legend with over 15 years of residency under her belt! With such a vibrant personality and love of performing, it’s crazy to think that this will be the last time the Canadian powerhouse has played live. 5 July 2019 at the BST concert in Hyde ParkLondon.

After canceling her tour several times after a pandemic, in December 2022, Celine announced that she was suffering from a very rare health condition, which could keep her from the stage for a while big After canceling her tour in May 2023, Celine vowed she would not “give up” and said she hopes to hit the road when her strength is back. Here’s everything you need to know about her health status, how she is today, and more.

Celine Dion diagnosed with Stiff Man Syndrome

Celine shocked the world with somber news in 2022 when she revealed her diagnosis of Stiff Person Syndrome (SPS) with an emotional video across social media, including Instagram. The rare condition, which often affects “about one to two in a million people,” is known to cause a series of brain health issues, according to Johns Hopkins Medicine.

“I’m sorry it took me so long to reach out to you,” Celine said in an Instagram video at the time. “I miss you so much and can’t wait to be on stage talking to you personally. As you know, I’ve always been an open book and wasn’t ready to say anything before. But I’m ready now. I’ve been dealing with problems with my health for a long time and it’s been really hard for me to face these challenges and talk about everything I’ve been going through. Recently, I was diagnosed with a disorder I have a very rare brain condition called stiff person syndrome, which affects something like one in a million people.”

What is Stiff Man Syndrome?

According to the National Institute of Neurological Disorders and Stroke, stiff person syndrome can cause muscle stiffness and spasms, heightened sensitivity to sound and light stimuli, as well as emotional distress that can cause muscle spasms. It is so rare, it can take years to diagnose and currently, there is no cure.

“It’s often associated with muscle spasms, which can be very serious. These can cause falls, severe pain and significant disability,” Dr. Emile Sami Moukheiber of the Stiff Person Syndrome Center at Johns Hopkins Medicine, told CNN. “Falling from severe spasms is very common. These spasms can be triggered by fear, extreme emotions, cold weather.”

The truth is that the disease can manifest in such extreme ways that some people with stiff person syndrome, like this young woman on TikTok, can’t even walk alone.

How long has Celine Dion been sick

Celine has been struggling with SPS for over a year, as she also had to cancel her tours in April 2022. “I am so sorry that we have to change our tour plans for Europe once again; first we had to move the shows because of the pandemic, now my health issues are causing us to cancel the shows. I’m doing a little better … doing the same thing in December of that year because her condition hadn’t improved enough to return to the stage.

In April 2022, Celine said that she was “doing a little better”, however, the recovery was “going very slowly. ” And eight months later, sadly, Celine was not recovering at the speed she had hoped. The condition affects her ability to walk, use her vocal cords at “100%” capacity, and more. “I have a great team of doctors working with me to help me get better, and my precious children, who support me and give me hope,” Celine told her supporters in December . every day to build back my strength and ability to perform again.”

Celine's health
Celine Dion is a world famous singer and songwriter. (Everett Collection)

The talented artist first came forward about the health condition in January 2022, but she had not yet disclosed the official diagnosis. Celine released a statement via Instagram and shared with her 5.5 million followers that “hard and persistent muscle spasms” are “preventing her from performing.”

How is Celine Dion doing today?

Celine appeared to be on the road to recovery, as she created new music for the 2023 film, Love Againstarry Priyanka Chopra. The Canadian appeared in the film with Priyanka and Outsideand Sam Heughan. Celine took to Instagram in November 2022, just weeks before her premiere clip, to announce her appearance in the rom-com. “See you at the movies! Celine stars with @priyankachopra and @samheugan and releases new music for the romantic comedy FACE LAW (new title!) coming to movie theaters May 12 (new date!),” her team captioned the post.

Her sister Claudette reportedly spoke to a local news agency in Canada about her sister’s health, as reported by Mark, in January 2023. “I am confident that life will give her what she gave back because she is a very intelligent woman, very generous and talented and in love with life too,” Claudette said at the time. to cry about her fate, I try to send her a positive feeling in the hope that she will go back on stage one day. I really believe in the power of love. Yes I wish her the best, that’s for sure. She’s surrounded by experts as she works to recover.”

Celine has continued to work to improve her situation. With the news that she was being fired Courage world tour, she said she still couldn’t hit the road. “I’m so sorry to disappoint you all again. I’m working hard to get my strength back, but touring can be very difficult even when you’re 100%,” she said on May 26, 2023. “I want you all to know, no I don’t give up… and I can’t wait to see you again!”

Months after Claudette’s last update on her sister, she would have spoken to her By Journal de Montreal (via SheMazing) in August 2023 to deliver somber news about Celine. “We can’t find any medicine that works, but we have an important hope,” Claudette told the outlet. The worried sisters noted that she believes that Celine needs enough rest. “I honestly think she needs to rest mostly. She always goes above and beyond, she always tries to be the best and the best at her game,” she said. “At one point, your heart and your body are trying to tell you something. It’s important to listen to it.”

In addition, Claudette revealed that her sister, Linda Dion, has moved in with Celine her live-in babysitter is reported to be in Las Vegas. “When I call [Celine] and she is busy, I talk to my sister Linda who lives with her and tells me that she works hard,” she told the outlet. “She listens to the leading researchers in the field of this rare disease as much as possible.” Despite the ongoing health problems for their siblings, the family would “trust” that things will improve.

In November 2023, Closer reported that Celine “feels stronger now” despite having “gone through hell” over the past year. “She doesn’t want to hide at home anymore,” an insider told the outlet. “She has good days – even weeks – and is committed to sharing those moments with her children.

A month later, Claudette opened up again about Celine with another update. “She works hard, but she doesn’t have muscle control,” Claudette said 7 Trips (through Daily Mail) for an interview in December 2023. “What breaks my heart is that she is always controlled. She is always working hard. Our mother always told her, ‘You’re going to do well, you’re going to do it right.'”

However, the family has not given Celine hope to return to the stage. Claudette explained, “It is true, in our dreams and in our dreams, that the goal is to return to the stage. What is the capacity? Don’t know.”

A report followed days later, claiming that Celine is working on regaining muscle control with physicians. “Celine is a fighter,” said a source close to the singer US Weekly for a December 22, 2023 report. “She doesn’t have as much control over her muscles as she did before, but she is working with doctors and physical therapists to get better. The insider added, “Celine has been taking time off to focus on her health but plans to take the stage again once she gets the go-ahead from her medical team.”

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